I admit, this book has been going slower than expected. It’s not the writing that’s the problem. It’s the content that upsets me. Flaring up my anxiety, depression, and insomnia. Bad things are happening to the tinhyp community I never thought would happen. Bad things happening in tinhyp world I really thought would be fixed by now. Compared to 5 years ago, tinhyp world has gotten worse. Not better. Most horrible of all, people are still being told and still saying nothing can be done. Unfortunately, that has power on social media. Professionals I talk to, including doctors, are shocked there are any tinhyp therapy options even though they’ve been available for decades. Never mind all the guided self-help and self-help options that have been around for years.
What’s bothering me the most?
- The swamp of over-the-counter hearing aid manufacturer changes in the USA. With international sales and shipping, this is definitely going to hit Canadians. People from other countries who buy the PSAP, BTE PSAP and OTC hearing aids from most US manufacturers will also get crap product, since there’s no consumer protection.
- Mental health approaches including CBT Cognitive Behaviour Therapy are widely ignored for tinhyp. Providers are refusing service.
- Evidence-based science is well behind rapid tech changes with potential for tinhyp including devices, apps, and on-line programs. Tech proven to help people with conditions like chronic pain, stress, anxiety and depression. Tinhyp scientists are studying the tech. But it takes time to do research, analyze, and publish findings, and then get the word out to clinics and the tinhyp community. It’s not the fault of scientists. There are only so many good researchers who have dedicated their careers to tinhyp, and there is only so much funding to go around. Do we wait until science proves which products and resources benefit people with tinhyp? One or two years down the road?
To be honest, the book is turning into a tell-all. Not just coping tools available, but where the tinhyp community is being let down and badly served. How we are either ignored as a consumer market, or targeted for high priced sales and scams. There are definitely people and companies with dollar signs dancing in their eyes, thinking about how much money they can make off people with tinhyp. As always, I want my book to help people learn what’s possible, what’s free, and spend their money wisely for the things that aren’t free.
I hope Tinnitus Toolbox: Hyperacusis Handbook will be a wake-up call for our community. It’s been a wake-up call for me. I’ll keep you posted on progress, and when pre-orders will happen. Thanks for your patience. I appreciate all your support for what is turning into a life-long project: tinhyp education.
I’m also working on a couple of exciting tinhyp volunteer projects. Will share more news in the coming weeks and months.
Never forget, something can be done. You are not alone. We’re all in this together in our tinhyp community. We can make it better. I have no doubt of that.
Jan L. Mayes MSc writes horror fiction and non-fiction, and is an international Eric Hoffer Award winning author, blogger and audiologist specializing in ghosts, noise, tinnitus-hyperacusis, hearing health education and plotting murders. Her writing has been featured at Tinnitus Today, Communique, silencity.com and The Horror News Daily.